Digital rights – emerging questions for the wellbeing of the next generation
In partnership with
The use of individual health data creates exceptional opportunities for generating insights on our overall wellbeing, but it also poses threats to human rights if the data is not responsibly collected, used, and stored. Young people, many of whom are digital natives, bring unique and valuable perspectives on this topic. As powerful changemakers, they need to meaningfully participate in the dialogues around health data and digital rights as these are issues that clearly affect their rights, health, and daily lives. In this session, Fondation Botnar is gathering experts to advance the discussion about health data in the frame of human rights and young people to better understand concerns and opportunities as well as listen to how we can make sure that young people are meaningfully included in these discussions.
Speakers, Panelists and Moderators
SARA LEILA MARGARET (MEG) DAVISAnthropologistGraduate InstituteSara L.M. Davis (known as Meg) is an anthropologist and human rights advocate based at the Graduate Institute, Geneva, Switzerland, and is the lead of the Digital Health Rights Advisory Group, a consortium of civil society and academic researchers. She earned her Ph.D. at University of Pennsylvania and was founding executive director of Asia Catalyst, as well as the first senior advisor on human rights at the Global Fund to Fight AIDS, TB and Malaria. She held visiting fellowships at Columbia University, Fordham University, and NYU School of Law. Her new book is The Uncounted: Politics of Data in Global Health (Cambridge U Press 2020).
RAJAT KHOSLASenior Director on Research, Advocacy and PolicyAmnesty InternationalRajat Khosla presently works as Senior Director, Research, Advocacy and Policy with Amnesty International. He is a lawyer by training and specialises on issues related to global development and human rights. Over the last twenty years he has worked on these issues with OHCHR, UNDP, UNFPA and most recently for the WHO. He has worked on these issues within the specific context of countries in Asia, Africa and Europe and led development of global and national policies in this regard.
YACINE NDIAYEYoung Experts: Tech 4 Health” CouncilPlan InternationalYacine’s passion for equal access to healthcare drove her to pursue the Master of Science in Global Health at the University of Geneva. She graduated with Bachelor’s degree in Biochemistry and Women’s and Gender Studies. Alongside her academic training, Yacine has had experience tackling health issues working as a Sexual Health activist, an Environmental Health Technician for a local government and recently, as a Consultant at Gavi, the Vaccine Alliance focusing on Measles and Rubella program management. Yacine is currently one of the 12 members of the Young Experts: Tech 4 Health (YE:T4H) which is a platform for young people to shape and guide the agenda towards achieving Universal Health Coverage (UHC) by 2030 through data and digital technologies. Growing up in Senegal and living in the United States and Switzerland has given Yacine first-hand experience of global health inequalities. Yacine is a fervent advocate for gender equality, education and health and believes passionately in the role of social justice and advocacy to enact change and create health equity.
ULLA JASPERPolicy OfficerFondation Botnar
Ulla Jasper is the Policy Officer at Fondation Botnar, where she is responsible for managing policy work and coordinating related external relations and partnerships. She holds a PhD in Political Science from the University of St Gallen and a Master of Advanced Studies degree in Public Health (MPH) from the University of Zurich. Before joining Fondation Botnar, she worked as a Senior Researcher at the Center for Security Studies at ETH Zurich.